Sunday, September 23, 2012

Turn Around

Today is better! Woot! I was surprised at how it turned around as yesterday was kind of yuck-o. I thought for sure I was in for another week of just asthma, but so far so good.

Now back to exercise!

Maybe tonight yet, or maybe tomorrow. It's not been determined. I'm feeling delightfully lazy at the moment so we'll see...

Books are selling well. I have no idea if this is a new normal for me or if it will all go *poof* next month, but this month shows the glimmer of a full time income. From writing.

Never thought I would say that.

However, my latest projects, while being fun and stimulating, have not exactly been cooperating. I have no idea when I'll next have something ready to publish. I try to publish every month as that's key to selling books....having new content on a regular basis. 

Anyway, the toddler graduated from OT. So she's done with all of it...OT and PT and Early Intervention. At least for the moment, we may find ourselves returning in the future.

I am happy, but it's bittersweet as she's at the low end of skill mastery compared to her peers. She's going to have to fight for it if she wants to use her body in ways the rest of us take for granted. Medicine may be done with her, but we have to parent what remains and we don't know what we are doing.

Take the bike ride we took today. She's still weak enough on the left that she favors the right to the point where she's leaned so heavily on her strong side, the training wheel has bent sideways. We bent it back, but now the wheel is peeling and she rides at an angle that threatens to topple her over.

As she rides, she cries because her "legs hurt." This is part of her diagnosis. She can't get the bike started and requires lots of assists. Also part of her diagnosis.

I try to empathize, encourage and use tough love. I never know if I'm saying or doing the right thing, and, judging from my inability to motivate her or stop the tears, I feel I'm doing it all wrong.

Some days the bike rides are fine. Others they are a bawling mess--either she's crying or I'm fighting tears when I see how far she still has to go and I don't know if she'll ever get there.

So the moral of the story is....closing the gap on a skill deficit is not the same thing as mastery.

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