tag:blogger.com,1999:blog-6123453264169963762.post3981184855885529309..comments2023-04-27T18:37:40.633-07:00Comments on Pinata of Pathology: Lost: Patient Power, Reward if FoundMedical Mojavehttp://www.blogger.com/profile/14445140579589340514noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-6123453264169963762.post-26879165356846114472011-06-01T12:41:11.534-07:002011-06-01T12:41:11.534-07:00It is truly difficult to maintain an open mind dur...It is truly difficult to maintain an open mind during each new encounter with a doctor. I've been burned a lot, perhaps worse than most. I tried more than 40 years to get a diagnosis. By the time I found out what was ailing me, I had stage IV cancer. A rare one, at that. But I am determined to find the best care possible for myself. I've learned to have a few "quiz questions" in mind before I see a speciaist. If they give the right answers, I continue but I always consider myself the consumer. I insist on being treated as a equal member of the team. I want to be as educated about my disease as the doctors and sometimes I encounter one that is dismayed by what I have learned. I usually can't work with them. Don't give up on finding the doctors who will work with you or for you.Anonymoushttps://www.blogger.com/profile/16899306291810800064noreply@blogger.comtag:blogger.com,1999:blog-6123453264169963762.post-87838824259953911772011-02-24T00:49:04.952-08:002011-02-24T00:49:04.952-08:00See the following steroid tapering regimine:
http...See the following steroid tapering regimine: <br />http://www.scielo.br/img/revistas/jped/v84n3/en_n3a03t3.gif<br /><br />From: <br />http://74.125.155.132/scholar?q=cache:rmQ-8MDMoZYJ:scholar.google.com/&hl=en&as_sdt=0,26&sciodt=0,26Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6123453264169963762.post-64559347187034162672011-02-13T10:58:34.624-08:002011-02-13T10:58:34.624-08:00Wow. All I can say is ... wow. I've had some i...Wow. All I can say is ... wow. I've had some idiotic doctors in my day, but yours? Totally knock it out of the park. <br /><br />I don't have anything to say except I now understand even more why you chose the name for your blog that you chose. <br /><br />There are some good docs out there, but I grok that it's like searching for the needle in the haystack. :-/Avivahttps://www.blogger.com/profile/16411667763810131618noreply@blogger.comtag:blogger.com,1999:blog-6123453264169963762.post-74559308757417421472011-02-12T16:08:06.149-08:002011-02-12T16:08:06.149-08:00Oh wow. I thought my experience was twilight zone....Oh wow. I thought my experience was twilight zone...nothing compared to what you've been through. <br /><br />I found the balance of power improved when we joined the concierge medical clinic. I was very fond of my former family physician, but she was determined to treat my lab numbers, not my symptoms. Even when my TSH was over the range she wanted to 'wait and see'...<br /><br />I wish I knew the answer. There are very few opportunities to exercise power as a patient. I'm hoping sometime along my dissertation I'll start to be able to understand this better.Penelopehttps://www.blogger.com/profile/11092060348938570183noreply@blogger.com