Saw the GI doc and I'm having surgery in a few weeks. The diagnosis we're going with is Sphincter of Oddi Dysfunction.They're going to cauterize the sphincter so it can't spasm shut anymore.
If that is what is actually causing the problem. There's really no guarantee.
I really did have pancreatitis.The CT scan showed "stranding" (aka inflammation) and a cyst on my pancreas.
However, all my blood work was normal so the ER sent me home. No high triglycerides. No elevated enzymes from the pancreas or liver. Apparently, I had the mildest case of pancreatitis in history.
Yesterday, I ate some stupid shit (because I was starving, which is the state most associated with food stupidity) and have not done my pancreas any favors.It's throbbing angrily in my gut, making my pay for my indiscretion.
Why did I do something so stupid? Because I didn't think I really had pancreatitis. I mean, you read patient stories of their experiences and they aren't out and about living their lives, they're in the hospital in a fetal position from the pain. That wasn't me, but now I know better.
So, yeah, I need to pull back on food. A lot. Back to fluids and soft, bland foods until the surgery. I need to get my pancreas in good shape before the surgery to reduce my risk of the surgery causing pancreatitis.
Still haven't heard back from the one hospital system. I have a relative in that system who is an established patient and their calls aren't returned very often either. It's funny how they don't mention that in their multi-million dollar ad campaigns.
I'm categorized as a severe persistent asthmatic* and I have a history of HPA axis suppression due to steroids used to treat the asthma.
Doctors miss the HPA axis suppression every time and actively fight me on it. I've had am cortisols of 1 and 6 and ACTH of less than 5, yet the doctors still can't get on board. The medical myopia and general lack of adrenal knowledge is horrifying.
How did I ever get diagnosed? I took premed classes for 2 years (during a health upswing) and figured it out.
I thought since previous rounds of suppression have been so well documented, I wouldn't have a problem again. I was wrong.
I've been fighting the current round of Secondary Adrenal Insufficiency since March 2010. It has eviscerated my ability to work and to function as a normal human being. Which sucks since I have a toddler who just wants her momma to play with her.
*eh... I bet it'll go back to moderate persistent, once the excitement of last year's hospitalization dies down.
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