Haven't heard back yet on the HIDA scan. Doc didn't call me on Friday. I may have missed a call from them Sat morning per the 'Restricted' flashing under missed calls on my cell phone, and no call backs, so I'm SOL until next week, after the holiday.
The 5 mg helped. Slowly. I suspect it was so slow because a)I maybe needed more than 5mg and b)I should've gone to bed for the day (yes, it was that bad) and instead I kept going.
Sitting outside in 90F heat is not really going to help you when your adrenal system has gone haywire. I supervised the toddler at the pool for 2 hours, laying on the concrete during each 15 minute swim break, scrabbling for every little bit of rest I could find.
Then we went swimming again later that day. Basically, I just plowed forward (well, not so much plowed as lurched unevenly). Went to bed early. Slept in a wee bit today. Got up and felt like I was trying to move through Jello, but decided to forgo any more steroids.
Sat morning was rough, but I caught the low blood sugar early, fed it a Godiva truffle (at the mall), and spent the day shopping with my parental unit. It was mildly embarrassing to insist that we stop to eat at 2pm as all I'd had was a flax/almond muffin and that truffle and the blood sugar was NOT happy about it.
Everyone else that has a body that works, they just go without worry of interference. I have to cater to the stupid things my physiology does and it can be awkward because no one understands. I had to get kind of forceful about "I need to eat. I'm going to be sick if I don't eat" and people looked at me weird when I said it. I wanted to melt into the floor.
The good news? I was hungry today. Really hungry. The Jello fog lifted by noon and I felt pretty okay. Like it was a good decision to not take steroids again.
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Diagnostic Tests to Reassure Patients
4 days ago
"Everyone else that has a body that works, they just go without worry of interference. I have to cater to the stupid things my physiology does and it can be awkward because no one understands." OMG, can I get an AMEN!? For me, this is one of the most acutely limiting things about having a traitorous body. When I recount stories from my adolescence, when I had hypoglycemia induced "seizures" (the cause for which went unrecognized), I usually get to a point where I say something like "so I showed them. I passed out and went all stiff and jerky on their ass."
ReplyDeleteWait...You can have seizures with hypoglycemia? Yikes. I didn't know that. Usually I get really irrational, like a caged beast, but I have yet to pass out/have a seizure.
ReplyDeleteIt's hard marching to the beat of a different physiology.
I even got the hairy eyeball for buying the truffle and I didn't even know how to explain that if I didn't do something, there would be no shopping trip. If I let the low blood sugar go too far, I can't recover. I may get it back up to normal, but I won't feel well the rest of the day. The sooner I deal with it, the better.
By 2pm, when I was alerting them I HAD to eat, I couldn't even stand anymore. I had to sit and put my head down while the parental unit shopped (and shopped and shopped and OMG shopped).
At least I knew what it was! I'm learning.
M
Oh yes, indeed it can. I wasn't allowed to drive for years because of these. Had I agreed to go on antiseizure meds, I would have been allowed to drive. It took me until I was nearly 40 to get an official diagnosis of hypoglycemia and we still don't have a "why" for it. I've been treating it like hypoglycemia since I was in my 20s though, having had some kind RNs I worked with check my blood sugar and my "ex-husband the doctor" empirically diagnosing it based on my "shit mood" and slurred speech (which improved with juice). Small wonder I don't have a lot of faith in doctors.
ReplyDeleteIt's so disappointing when your family can't get it together and acknowledge the realities of your physical states. I try to carry things like candy and nutterbutters in my purse, but I do still get caught short sometimes. It helps to have people around who at least won't act silly when you need help (or need to help yourself).