The Wand Worked

Those fairies making wands in China are totally badass. Voila! I am better. From feeling like my head was going to detonate and shoot my teeth out like shrapnel to perfect health. Just in time for other sh*t to hit the fan, but this blog is not about that sh*t.

We've been taking the toddler to church because she is curious about Jesus. I have PTSD from being a preacher's kid, as evidenced by the sorry fact I cry every time we go to church, but we go anyway. I have learned to bring Kleenex. (No, not kidding. Yes, totally lame, I'm working on it.)

This week, they dressed up in their costumes and collected change for UNICEF from the adult Sunday School classes. Isn't she adorable?




When I was a pre-teen, the family business took me to weaving conventions on a regular basis. It was as hippie dippie as it sounds. My mom bought me the kimono the toddler has on* and I dug it out of the closet when I saw how cheap and crappy the store costumes were. Sorry, not paying $30 for fall apart crap made with industrial carcinogens--those fairies in China are slacking on the Halloween costume front.

(*I did actually wear it. Worse, I liked it. Which may explain why I was such a loner during my adolescence. Kimonos were not and are still not 'in.' )

Of course, only after I got the toddler all excited about the costume did I find out the kimono has some value. It's about 60 years old and people collect them. I had no idea! Now I'm just holding my breath that this is not its last year on this earth.

But she's happy. I'm happy she's happy given that she had a 5 hour fit over costumes a couple weeks ago. And it's kind of a family tradition as I was a Geisha girl for Halloween back in the day.

Snot vs. Anesthesia

I am trying to fly without steroids today. Of course, today is also much worse on the boogie front. Possibly looking at a sinus infection, although it's too soon to say for sure.

So...what level of sick is too sick for anesthesia?

I know I need to call and ask, but I'm hoping if I wave my daughter's little made-in-China fairy wand around and consult the magic 8 ball (aka the internet) that things will magically work out.

Fast 10

The toddler got sick just in time for her big birthday bash.

*bangs head on wall*

We are 0-4 on avoiding the birthday bugs.

And now I have whatever she had.

This bug is more insidious than the others I've danced with recently and is causing the adrenals to flake.

By the time I was using red lights as an excuse to nap, I figured I should take some steroids.

I'm starting at 10mg and it is slowly percolating through my system, lifting the fatigue monkey off my back.

It is amazing, still, how fast this all hits. The night before the sore throat started, I had massive crying-in-my-sleep charley horses in the arches of my feet. I even woke the hubby, which is a feat since he sleeps like a vampire at noon.

I couldn't figure out what was going on. Spasms in the small muscles of the feet and hands are classic signs of HPAA suppression, but I was fine, so WTF? Then the sore throat hit. My appetite died. Then I couldn't stay awake and ended up on the couch, too out of it to prevent the toddler from using my kneecap as a push-off point in her efforts to spin in the office chair.

I thought about moving several times, but just went to sleep instead.

Today I woke up and the fatigue was just bad news. I napped sitting up in the waiting room at PT. Based on that, I realized if I dropped the toddler off at preschool and went home, I would probably fall asleep and not be able to wake-up to go get her.

So 10 mg seemed like a good idea.

Last Laugh

Hahaha. Well played, Murphy's Law. Well played.

I have food poisoning (the windshield).

It's not terrible, but just enough to completely derail me (the bug).

And, lucky me, we have a Halloween party.

Which the toddler has been throwing a 16-year-old tantrum over costumes. Hours and hours of emo drama. Oh. My. God.

We tried 4 costumes. I even pulled out an 80-year-old vintage kimono and did a Geisha costume for her. She looked darling. Which means, of course, she hated it and her shrieks spiraled into new octaves.

I'm about ready to yank her clothes altogether and call her Lady Godiva, except I hear CPS frowns on that.

My student canceled tonight, which is good since I feel pretty yuck-o. Of course, yet another Monday with no billable income. I'm, like, totally talented at making no money.

The other federal school program is still waiting on funding.

Further, the endoscopy with anesthesia to combat my Twilight Kung-Fu now conflicts with that job. They haven't fired me because they have no idea as to start date and think they can get a sub so it may work out. But I would not be surprised if this one fell through too.

Okay, time for the Halloween party. Let's all hope I don't puke!

Coma of Procrastination

I have work to do, but I don't wanna do it. So, hi. Let's kill some time.

Last year, if you recall, I 'fired' birthday parties. Without fail I would be sick or the toddler would be sick or guests would have H1N1. Every year I cooked a full meal for 30+ people and cleaned my house and dealt with the sick. After the third year in a row, I quit.

Of course, no one was sick for the toddler's birthday this year, which did not surprise me. Murphy's Law likes to make an example of me.

(Don't tell Murphy, but I planned it this way. He thinks he's such a maverick...)

The downside? Three separate birthday parties. Which means an exponential increase in cake consumption.

Ergo, I am so high on sugar right now, I suspect I'm having an out-of-body experience.

And nope, still not gaining or losing weight. It really doesn't matter what I eat or don't eat--within reason, a gallon of ice cream three times a day probably would not end well. I'm just stuck and mostly accepting that I have to be patient and wait my body out.

It doesn't help that I cut back on exercise. Something had to give. My energy is much more balanced now that I'm not trying to work out daily on top of everything else. It frustrates me, but I'm also glad to see an improvement. I just need to keep up with some form of strength training as the push-ups help my neck and the squats keep me from sciatica type pain due to de-conditioning. Plus stabilize the knee that wants to die.

Yes, I'm falling apart. Try not to stare. I'm sure part of it is related to the effects of steroids on my muscles.

The other change, I can get up in the morning now. There's no longer the feeling of wanting to sleep forever. I wake up and I'm ready to go, even if I'm a bit short on sleep. It used to be the toddler would snuggle with me and watch PBS while I snoozed as long as she would let me. Sometimes I would negotiate with her for more sleep. Now I don't need the extra sleep.

That's pretty significant progress actually. I can't remember the last time I was able to just get up and go. Probably sometime before March 2010.

Yes there were some moments where I did pretty well, but the default setting has been being too tired to get up, hitting 'snooze' for 30 to 180 minutes. The metric was, it was a bad day if I couldn't get up until noon, anything earlier was a pass. Now I can bounce out of bed. Now I leave the toddler behind because she wants to finish a cartoon and I'm done laying around. That is a super new normal.

Saturday night, however, the hubby and I went dancing. I couldn't do much more than 2 hours (1.5 of it dancing) before pooping out. Today has been a low energy day for me as a result--just dragging. So I still need to be careful and plan to pay the piper on those occasions that I know will exceed my limits.

I really need to remember that just because the HPA Axis is fine on paper, does not mean I can go 1000mph. I've done this before. The recovery is always a slow progression. This has been the most gentle one yet. In past HPAA suppressions, I was cut loose on double digit doses of prednisone and the steroid withdrawal was crippling for up to a year after.

I mean, I can exercise! That in of itself is pretty amazing, even if I have to scale back. Prior episodes, I would try to go for a walk and end up sitting on the sidewalk, weeping in frustration as I waited or the hubby to go get the car to pick me up.

You don't come out of suppression one day and go back to full capacity the next. That's like taking off a leg cast and immediately trying to run a marathon. Why do I always forget this?

Give it time. Give it time. Give it time. My new mantra.

Get Better or Face Evisceration

I finally had a day where I felt like I hit my stride with this crazy schedule I have going. My energy is okay and things are in a upswing.

Thank goodness for the improvement, otherwise I would be fodder for the new fad of targeting and eviscerating patient bloggers who aren't sick in just the right way. Because that's what puts the care in medicine, amiright?

Like I need help finding that kind of abuse. I mean flame war. No, that's not right, umm, trolling? No wait, I mean coping with the stress of a really hard job, you guys, so all you complainers who don't like what's being said? Shut-up.

Or you're next.

Med Bloggers:Where patients are punch lines and on a really bad day? Punching bags with no privacy or dignity or compassion.

It's okay if patients get reamed by name so long as the med blogger is anonymous--right?

Once again, the patients don't make the rules. Or hold any power.

Why am I not surprised?

Internet imitates life.

Quick List

1. The toddler may graduate from PT soon-ish. Squeeeee!

This does not mean that the falls have stopped. I don't think they will, not any time soon. But we have seen progress in physical ability and control. Big picture? I can take her to a park and she actually plays. Before? She just stood there unless you took her by the hand because she didn't trust her body to be there for her.

We're going to take a break over Christmas and see if she regresses. OT will continue as she just started in July and has a ways to go still.


2. By the way? She'll be 4 tomorrow. *bawl* I don't know where the time goes.


3.I lined up 4 jobs to try and keep my schedule open for various therapy appointments for the toddler as well as to maintain flexibility for if I get sick (I'm still a little skittish.). What are the odds that all 4 would be a bust? For me, apparently 100%. Very frustrating. It breaks down like so:

1.Writing. Guess what? Great reviews from big review sites don't do sh*t for sales. However, I am building a 'brand' whatever the hell that is. Based on reviews of my work so far, an author is featuring my book in their newsletter for their fan base. There's all sorts of positive energy, but no actual cash. Screw the energy, I need the cash.

2.Tutoring. Students continue to not show up which means I don't get paid. The whole program is a waste of federal tax dollars. 1 student in 3 years actually finished the program. ONE. The rest drop out because their home environment and mental health are so unstable that reading and math are the least of their concerns.

3.School program coordinatorwhatsit. Another federal program, this time one with a great reputation. Funding is still pending (it will come, but who knows when) so start date has been pushed back three times.

4.Contract tech work. Ill-suited to my talents, which combined with sh*tty training? Disaster. I'm giving it a month and then I'm going to quit and possibly file some kind of complaint somewhere official. It's not a scam, but it's shady.

My preference would be full-time something, but I held off due to the toddler, my own wobbly recovery, and the fact we may be relocating for the hubby's job. Hopefully, we will hear more on that soon because the waiting is getting old.