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Wednesday, November 30, 2022

Just When You Think It's Safe

Teen isn't doing so great on the health side. Sigh. I don't know. We've been battling one persistent issue that has gone through eight medications in the last year. 


They keep telling us it's going to be fine, that it'll resolve. It would look like maybe we had it and then no, no we didn't. Next med, same story. Rinse repeat. EIGHT times.


Unfortunately, I think she needs an ultrasound if not an MRI. There's some agreement on that from the doctor side now too so maybe it'll actually happen. (I would've done an ultrasound at least about 6-8 months ago. I personally feel they've left her to twist in the wind too long* and pretty much figured we'd end up where we are now. Unfortunately mom instincts aren't considered medically relevant or valid.)


And this other thing is acting up that we thought we had a lid on. I think it's benign, more importantly, the docs think it's benign, but it's hitting levels now that justify ER visits for folks who don't yet know what it is. Like, it's not cool. Benign doesn't mean asymptomatic. Since we're seeing new highs, I'm not sure what the game plan should be.


It's frustrating. 


*Ironically this is something where we're in adult medicine because there are no specialists here so she's getting the usual shitty runaround that adults get. In peds, with the folks we're working with, they would've done the imaging a long time ago. And in fact, the peds are the ones who are ready to step in and fix this shit.


Adult medicine is bullshit y'all. They deny, delay, dismiss, and deflect you right into hell. Is it the insurance companies? What? What makes it so awful? So hidebound? So quick to make patients suffer and so slow to do anything proactive? I wish I knew.

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