I felt horrid all weekend. Ended up with that 5mg dose on Sunday and tried to do without the next day. Monday was okay-ish so long as I sat on my ass, which I mostly did. When I perked up a bit at night, I decided to go for a walk.
Ha.
That's rich. Me? Exercise? Only if the sad zombie shuffle counts as aerobic activity. Made it four blocks on weak legs and called it quits.
Tuesday, was worse than Monday. Ostensibly due to my zombie workout. Had a hard time staying awake, my eyes kept closing. My legs were very weak, like a weight was pressing me down, demanding I kneel. I couldn't handle the stairs without stopping to wait for my legs to recover and had to sit a lot. Gait was slow and stumbling. The last time it was this bad was right after the adrenal crisis last year, so it really got my attention.
Breathing was fine. No shortness of breathe. No chest pain or pressure. Any asthma was mild, still reacting to the tomato pepper 'poisoning.'
Since I had an IV appointment with Dr. Alternative, I held off on steroids. Yes, I drove with eyes that would not stay open. I'm going to try not to do that again.
Dr. Alternative was not in the clinic so I threw caution to the wind and took 5mg with the goal of improving my driving. That opened my eyes, but my legs were still very weak. So I did another 5mg and that did the trick.
My theory is I probably underdosed the stress dosing while I was actively ill and I'm in the hole. I need to stress dose for a while to climb back out. I'll be starting with 5mg and see how that goes. The goal is to get me functioning at a level higher than the sentient vegetable I've been of late.
Although we'll see what Dr. Alternative thinks--maybe they have a trick or two up their sleeve.
Oh, how was the Meyer's Cocktail? Yesterday's IV infusion was the first where I've been healthy enough not to have an acute asthma response. It still kind of wiped me out despite the steroids though, which I don't think it's supposed to do. I don't know.
I got a hug from another patient though. I must be scoring high on the pity index. That has not really ever been my life's goal.
Should I Get a Second Opinion?
3 days ago
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